Me and my baby

Hi guys, how are ye doing? I am feeling a little bit better. I have been really sick for the last two weeks with a really nasty cold. I hope I am turning a corner now. I have had to miss my best friends birthday party in Galway because of this silly cold.

Poor daddy has managed to catch the Man Flu. Now from what I hear this is like the worst possible flu ANYONE can ever get. We girls are sooooo lucky because we can’t catch Man Flu, only guys can! With Man Flu you can’t do anything for yourself and you have to stay in bed and be nursed for ages. However if girls get the flu they can still do everything…. Phew

Nanny and Grand dad are sick as well! It’s like a small hospital here! Thankfully all my other family are ok. I was with Nana Rose and auntie Lauretta during the week and then yesterday I minded my baby all day.

Now this is a seriously responsible job. I spent the whole day holding her hand and hugging her. I kept putting her dummy in her mouth and every time she tried to go to sleep I woke her up. I couldn’t have her missing out on all the fun!

In other news the photo shoot for the Echo was a disaster. I am so not impressed with mummy and daddy! I spent ages getting ready and dressed up for the photo shoot. Uncle Mark turned up with Gra and my friends Tadgh and Jason. I was super excited!

But then this guy appears from no where and I thought he was a doctor ready to give me an injection. Usually when people turn up at my house that I don’t know I end up getting hurt as usually they are here to give me an injection. So I made sure not to do what he said and cried my eyes out. I was pretty proud of myself when he left with out giving me an injection,until I heard the grown ups talking about the paper and the picture. Oh man DEVASTATED I was….. Anyway I will be in the ECHO on Monday, but please remember when you see my picture why I don’t looking stunning.

I also learned how to get out of my cot this week. So mummy and daddy had to take down the sides. Wooo hooo freedom:-)

My mummy didn’t have such a good week. Her I phone broke, she broke the washing machine, dropped my meds on the floor and they smashed all over the place, she lost her laser card….. The list goes on. Thankfully now that I can get out of my bed so easily she gets to spend two hours putting me to bed now. So that’s great for her. Last night we had loads of fun. I kept getting out of bed and she kept putting me back. So exciting.

Anyway guys I really Gota run. It’s Saturday which means major house wreaking so mummy and daddy can have loads of fun cleaning up after ME!

Love ye all your little lady B x x

When will I, will I be famous!

Well guys super exciting news! My God father and I are having our professional photo shoot for the news paper tomorrow night. Oh the drama of it! What to wear, how to pose!!! As you can imagine I am a super busy lady today.

At the moment I am down minding my Nana Rose and Auntie Lauretta, it sure is tiring trying to keep them entertained by climbing on top of everything and anything I see but add the stress of getting ready for my professional photo shoot on top of that and you ll get a picture of my stress levels right now.

The Echo are doing a feature on my God daddy Mark and I. As you all know Mark is running the Cork city Marathon for me and all the money he makes is going direct to the cardiac department in Crumlin. He is doing really great so far and I think he will reach our target of 1,000 euro. The nice people in Crumlin are going to be so happy with me.

In other news I brought Nana and auntie Lauretta to the circus. They just loved it. This is my second circus this year so I am pretty experienced but Nana and auntie Lauretta hadn’t gone in years. They were super excited. I thought they were going to jump out of their seats with excitement, lucky for them I was able to calm them down.

I was a little sick last week. I have a real nasty cold that I just can’t seem to shake. Of course mummy over reacted and took me in to the hospital. I was completely totally mortified after I got over the shock of being in a hospital. I knew where I was immediately when I saw the people in the blue coats. I started bawling crying and discovered that if I look up at mummy and cry in a really soft voice while saying ” why mummy, why” ! it pulls at her heart strings and she nearly cries as well. I hoping if I do this enough she will never bring me back there!!!! Worth a try anyway:-)

So I am going to head off now and finish entertaining, I see a lovely dangerous looking ledge that I haven’t tried climbing yet. Looks like fun! Don’t forget to buy the Echo the day after tomorrow and I will autograph it for you the next time I see you, your little lady B x x

MyGod father, my hero!

Hi guys, hope your all doing great. I am super good these days. In fact for the first time ever mummy is actually saying my colour is good, I am gaining weight and I am in the best form ever. You can really notice now how my operation has changed me for the better. Woo hoo – long may it last.

So life is good. These days we are so busy living and enjoying every last minute that sometimes we forget last year even happened! Only sometimes mind you, It was a really big part of our life and for many families out there it’s unthinkable what happened to me and my little family.

However I must say its changed so many of us for the best and one of them people in my little family is my Godfather Mark. He is like the best, kindest and nicest person EVER. He is a real softie guys and he took it really bad when he heard that his unborn God child had a special heart.

Now to be fair to him it wasn’t really his fault, it was my mummy’s fault! She called him bawling crying on the phone on the 17 th of September 2010 and told him the news about my special heart and tasked him with the very horrible job of letting all our friends know.

You see mummy and daddy were too sad to see or speak to anyone that day or for many many days after. So the very first job he had as my Godfather wasn’t an easy one, that’s why I was really surprised to hear that he was topping this extremely difficult job off with an even bigger one just for me! Guys he is only gone and decided to run the Cork city marathon for me in aid of crumlin. Yes that’s right the Full marathon that’s 42 kilometres !!!!!!! Oh man………

Now as you know this is no easy task. My Godfather started training this time last year. He gave up smoking and his weekend drinks night just because of me! He also trains every night to make sure his heart stays healthy and to make sure he does me proud on the day of the marathon.

Guys I would never ever tell him this but I am already the most proudest God daughter EVER. I love my God Daddy Mark and I can’t wait to be standing at the finish line waiting for him to pass the line so I can run into his arms and give him a big mwah for being the bestest God daddy EVER.

Guys I hate to ask you to help me out again because I know you all have been really good to me but if you can afford a few Euro this month to sponsor my God daddy I would really, really appreciate it. All the money my God father will raise will go to the Cardiac department in Crumlin. Every penny counts and will go towards making it a little easier on the children, parents and staff of Crumlin.

Thank you so much for your extremely generous support so far. Each year we are going to do a fundraising event, last year it was the table quiz, this year it’s our marathon. If all my friends and family donate even 5 euro each year to our fundraiser then we will have done our bit for crumlin to pay back what they have given me and my family – a chance of an amazing life and that’s something we could never buy no matter how much we spent.

Goodnight everyone – I love you loads your little lady B x x

To donate please go to our sponsor ship page on the following link -

Béibhinn and Marks Marathon Page

Thanks guys x x

Elise Faith

If you get a chance this weekend please remember and say a little prayer for Béibhinn’s heart buddy, beautiful Elise Faith and her amazing mummy Tessa and Daddy Dan. Elise lost her battle with heterotaxy this morning and earned her angel wings at 6.15am American time.

Her mummy is such an amazing support to other heart mums in her little heart family and my heart breaks for her.

You will always be in our hearts and prayers Elise lots of love Béibhinn and her mummy and daddy x x

Heart to heart

Well everyone it’s been 458 days since my arrival and I finally got to go on holidays. It was only a mini holiday and you are never going to guess where mummy and daddy brought me for my first big trip away! They only went and took me to Dublin! Oh man I thought it might have been Disney land or something but no I went back to the big smoke, back to where it all began 458 long days ago.

You see this holiday was covering many bases. Firstly it covered my big heart check in Crumlin. By the way I did excellent and Dr Colin Mc Mahon is well pleased with me. He said my heart function is ” excellent” and that the operation circulation is working really well. My leaky AV Valve is still moderate but stable. In fact his exact words where” guys this is a good visit, from where you started we couldn’t ask for anymore than how she is doing now” he even said I was lovely and pink and had a real good colour.

I didn’t like to say that was from all the screaming, kicking and hitting I was doing while he was trying to examine me. He called me feisty! I will give him feisty one of these days when I am big enough to stick the echo scanner on his heart and see how he likes it!

Anyway I better stop giving out about him because mummy and daddy just loves him and thinks he is the best thing since sliced bread! Hmmmmm. So guys you can just imagine how delighted my mummy and daddy were. They practically skipped back to the car.

Daddy dropped us back to the hotel after the appointment because he had to go back to work. Daddy is working in Dublin now you see, which brings us to the second reason I was up in Dublin.

We got to spend time with my daddy in the evenings when he finished work. During the day mummy and I got to hang out. Now usually mummy and I have a great time hanging out together but for some reason mummy was acting really strange that day.

She kept telling me stories about the hotel and what it was like before I was born. It was really spooky. We walked around the back of the hotel to an apartment block. I was so bored but by the way mummy was acting I decided I would keep quiet and just continue to put my arms around her neck. Mummy looked really surprised when she pushed the front door of the building and it opened. She said it was strange because it used to always be locked before.

Guys mummy kept getting stranger and stranger. Next thing I know we are climbing up these really quiet stairs up to a big long corridor with a big brown door at the end that said number 17.

Mummy walked down the corridor with me held so tightly in her arms I nearly protested but something stopped me. Then she touched the door and made me do the same. Then something even stranger happened. Water came running out of mummy’s eyes. Kinda like when I fall off what ever I am climbing on and bang my head really hard. However mummy didn’t make any sounds like I do. When I cry mummy says Marion and Brian our neighbours can hear me. So I guess it’s not the same thing.

Mummy said ” Sorry” to me! I don’t know why she said this. She then told me that when I was in her tummy she used to walk this same corridor every night from the 17 th of December 2010 to the 18 th of January 2011 while they were waiting for the stork to deliver me.

She said she would walk up and down this long corridor 30 times every night and each time she got to the door she would touch it just like she made me touch it. Then she told me how she would talk to me in her mind every night and how she pictured me and prayed that one day she would hold me in her arms and be able to walk that corridor and touch the door.

Now the water was really running down mummy’s face. She told me that she was so thankful God sent me to her and so happy her prayers were answered and she got her wish to walk down this corridor with me and touch the brown door with the number 17 on it.

God I am really happy you sent me to my mummy and daddy as well. Everyday we thank You. However Holy God it would have been really great if you had given my mummy some imagination! Like here we are in a boring, long cold corridor that’s really quiet and kinda spooky with the most exciting thing being a brown door with 17 on it and this is all mummy wanted and all mummy prayed for from the 17 th of December to the 19 th of January!

Oh Man if only she had imagination and had prayed for an all expensive, inclusive trip to Disney land with VIP passes to meet Mickey and Minnie Mouse things would be really different right now, you know what I am saying!

Anyway I decided to let the madness continue and let mummy have her moment! So I just rubbed her hair and gave her a mwah. Big mistake, this just made more water run down her face. Oh man……

So finally we got back to the hotel and mummy decided it was retail therapy time. Woo hoo Liffey Valley here we come. Mummy spent a packet on me and because I did so good in my appointment I got to pick out some new toys. Then we had lunch in Mc Donald’s and I went for a little nap while mummy did some shopping for herself. We ended up having a great day.

When we got back to the hotel mummy went for a swim and daddy and I got to hang out together and play with all my new toys. I showed daddy my new shoes and all my new clothes. I know he is really interested because he always smiles when i start my fashion parade.

Then we went to dinner and I got yummy sausages and watched Oso on mummy’s i phone in my high chair. Mummy was re capping our very strange experience with the brown door to daddy and I sure wasn’t planning on wasting any more of my time on that.

On Saturday nana, grand dad, auntie Laura, uncle Pete and my baby came up to see me. I thought that was very nice of them until I heard they were actually here for my Grand auntie and Grand uncle’s 60 th birthday party. Which brings us to the third and final reason we are in Dublin. Now I don’t know was it the shock of somebody being 60 th or the fact that it wasn’t Moi they were coming to see that got me! I will have to think about that one!

I did get over it because only last week my new best friend Lana and her mummy and sister came all the way from Galway just to see me. Lana is the only other girl in Ireland that we know of that had LAI Heterotaxy like me. She had to have her three operations in one as well. So we have alot in common and that’s why we are now best friends. I brought her to Fota, kinsale and Blarney and we spent the whole weekend holding hands. Our mummy’s had loads of heart to heart conversations as well and they are best friends now as well:-) ahhhhhh

Also since I saw you last I have been on a big Easter egg hunt with Grand dad but that’s a story for another day.

I am signing off now as I have a big day tomorrow. It’s my auntie Laura’s birthday. I need to entertain her and give her loads of mwahs. Also Daddy’s birthday is on Thursday so I have alot to do. Talk to you all real soon. Be good, lots of love your little lady B x x

Happy Easter Everyone

Well here’s to another Easter guys. This means loads of Chocolate eggs, presents for me and of course spending time with my lovely family and having loads of fun. It is also a very important day for holy God and Jesus and we are all going to church tomorrow before we head down to West Cork to my Nana and Grand dad. They are on their holidays in their mobile home so we are going to celebrate Easter there. Nana is holding an Easter egg hunt for Brooke and me. Who ever finds the Easter egg and presents gets to keep them. Guys this is major league exciting for me. I didn’t want to point this out to anyone but I am totally going to win! No body seems to realise that Brooke just sits there and looks pretty. She does have an amazing smile that distracts everyone. So the plan is – while everyone is busy cooing and ahhing over her I am going to find all the chocolate eggs and put them in our car before anyone realises. Ha ha result. Sometimes I worry that when I grow up I am not going to be as smart as I am now. To be honest guys adults are not very clever really, are they! anyway don’t worry I am going to share my Easter eggs with my baby Brooke and all my friends. I just want to be the winner that’s all.

So alot has happened since the last time I posted. I know I am not posting every week anymore. You see I am just really busy now guys. What with my new job redecorating the house every day and seeing my two boyfriends Daragh and Jason, life is really complicated.

Daragh’s party was a success. I wish I had not worried so much about it because in the end no body cared that I am both Daragh’s and Jason’s girlfriend. In fact the adults thought it was cute and funny. Phew. Apparently this will only last a few years. When you are older it’s frowned on so I am going to make the most of it while I can. In fact I may even find myself another boyfriend! What do you think?

Speaking of birthday party’s, it was my godfathers birthday this week. Guys, as you know he is ancient. He is running a marathon for me in June. He wants to raise loads of money for crumlin. I am going to tell you all about it in my next blog

I am really learning to communicate now guys. I can say so many words, my favourite one is beach. I love it because I love going to the beach but also because mummy and daddy get really embarrassed when I say it and point at people but usually the people just laugh. Strange! I can also say ass which means yes but like beach people think I am saying something else!!!!!

This week mummy and daddy are on holidays. We are going to go so many places. Yesterday we went to the farm. I love the farm, I got to feed the animals and I even got to pet the baby lambs, chickens and rabbits. Mummy made us a yummy picnic with eggie eggs because it was good Friday and daddy and I ate all the sandwiches, crisps and yummy Easter cake. I fed some of my sandwich to the black cat and she ate out of my hand. Mummy got a fright, I don’t know why! I wish she wouldn’t scream my name when she gets a fright because then I get a fright and I jump and daddy laughs – oh man. I love animals so much I think I am going to be a vet or else a farmers wife when I grow up.

During the week we are going to trabolgan holiday village. Barney is going to be there and there are loads of activities for me to do. Mummy and daddy are excited, nearly as much as me. As you can see guys, they are easily pleased.

Also daddy is going to take us for a spin in Daddy’s new boat. How exciting is that! This week is also the 100 year celebration of the famous Titanic. My auntie Laura, uncle Pete and baby Brooke live in Cobh so we will be visiting them and heading down to the celebrations.

So guys it looks like I have a busy week ahead. I hope that you have loads of plans for Easter and I hope you have a lovely time with your family and friends, until next time, lots of love your little lady B x x

When Irish eyes are smiling

Hey guys what a fun few weeks it’s been. I went to my very first St. Patrick’s day parade with my family. I must say my daddy mortified me by wearing a big coloured thing on his head. It was green, white and orange but it kind of made him look like a clown in the circus.

Speaking of the circus I also went there for the very first time ever as well. Guys you just gota go ASAP. This was probably one of the funniest things I have ever done in my entire life. I nearly fell off my mummy and daddy’s lap a million times during the two hour performance because I was just so crazy and excited by what I saw.

I can’t even begin to describe how incredible the whole thing was. There were camels , elephants, acrobats, clowns and just when I thought they couldn’t possible top their acts out came The One, The Only Mickey mouse and his girlfriend Minnie!

Well guys I actually did fall off the seat with excitement this time. Poor mummy got an awful fright but I didn’t care I just sat right back up and danced and clapped along with the music.

Unfortunately the circus was completely and totally wasted on my mummy and daddy. They just spent the whole time looking at me and smiling at each other. Man I wish I had saved the money on their tickets and brought my baby Brooke and my guy Daragh instead they would have totally appreciated it more than mummy and daddy. Oh well, I guess you live and learn.

Speaking of my guy Daragh, it was his first birthday today. He is now officially in digit land. Man we are really pushing on. Time is just flying by. Thank god we are making the most of it, that’s all I’ll say.

I must be completely honest with you all. I have a big secret !!! And I mean massive, I have been doing something really bad lately. I have been seeing another guy behind Daragh’s back;-( I know guys,it’s just awful of me!

He is older than Daragh and really looks after me. It kinda started a few weeks ago. We have been hanging around in the same gang for ages and his brother is going out with my guy Daragh’s sister Liadh. Wow it’s just sooooo complicated!

Anyway his name is Jason and he is also my god daddy’s son. I don’t even know if this is legal! Man I hope it is. I am way to cute to go to jail. I feel much better now that I got it off my chest. It’s been really bothering me for ages.

Please guys don’t open your mouths to ANYONE about this. If it gets out I am going to be in super hot water with so many people on so many levels. I do however need your advice. I am going to be seeing both Daragh and Jason together on Sunday for a play date. You see to complicate things further all our mummy’s and daddy’s are friends. Now I really dont know what I am going to do or how I am going to act with them both in the same room together at the same time. I am just hoping there wont be a big fight.

Wow this growing up stuff sure is complicated. Ever since I left baby land it just keeps getting more and more complicated. Between this and my new job I am really starting to stress out. So guys if this is what it’s like to grow up no wonder mummy and daddy look so ancient!

I am posting a few pics of all the different fun things I have been doing over the last two weeks along with some pics of me and my new guy. If any one has any advice on what you all think I should do about the Daragh / Jason baby love triangle situation it would be really appreciated.

I ll let you know how Sunday goes, your confused in love little Lady B x x

Rampage

Well guys this life sure is super busy. Now that I am officially into digit land and let’s face it, getting old…. I decided it was about time I pulled my weight around here ( not that I have much weight to pull, but anyway) so I got a job!

The most convenient and rewarding job is to help my mummy around the house. Man am I good at that! I must admit I am super talented but never in my wildest dreams did I think I would be so good and creative! Mummy does a good job keeping the house looking nice, but guys between you and me it looks really boring with everything in its place. All I can say is thank god I decided to take on the job as my mummy’s business partner in decorating and organising the house.

Now guys this isn’t an easy task and I must admit it is time consuming. A typical day starts with me emptying all the cupboards in the kitchen. This of course has a number of benefits – firstly you get to see everything you have, hence making it really easy to grab what you need in a hurry to make breakfast and secondly it looks so much more interesting and colourful.

Mummy obviously did not agree because she started putting everything back in the cupboards. While she was busy putting everything back in the cupboards I checked to make sure she had the washing machine setting on the correct number. Thank god I did guys, she had only gone and put it on 40 everyone knows higher numbers are better. It’s ok however because I fixed it and turned the number to 90. I was happily observing my work when mummy realised what I had done and ran over and turned it back to 40. This woman has serious control issues. I really don’t know how we are going to work together like this. She really needs to learn to delegate and appreciate my work. Thank god I am not a quitter. So when all this was done I helped mummy empty the dish washer. I learned something really cool, if you grab a cup by the handle and throw it really hard on the floor it smashes into loads of little colourful pieces and there was so much colour every where, I was super impressed with myself. Mummy wasn’t very impressed however, Typical.

So while mummy was picking up all the little pieces off the floor I decided I better make myself useful and put things into the bins like I see mummy do all the time. I got my bottle, hello kitty plate and mummy’s purse from her hand bag and put them all into the bin. While I was in there I found a few brown soggy things that mummy puts in her tea. Guys these are super for colouring on the tiles in the kitchen. I created a master piece. Well what do you think mummy did! You guessed it she only threw her eyes to heaven and got a cloth a wiped the floor. At this rate daddy will be home from work and he ll think I did nothing to help mummy all day.

I was getting a little tired of the way mummy was acting so while she was taking her purse out of the bin and wiping last nights dinner off it I decided I would rearrange the stools in the kitchen. I started to push them over to the fridge and next thing I know they fell on top of me and I started screaming. Mummy ran over and picked me up. She looked scared and asked me was I ok. “hello” was I ok! This was all her fault. If she had just left all the wonderful work I had done so far today to show daddy all would have been fine.

Eventually I calmed down and mummy took me into the office / playroom so I could watch Oso and she could catch up on her work emails. After a while I felt bad that I wasn’t helping more so I crawled over to mummy and put my fingers into what mummy and daddy call the shredder, just to see if there was any paper in it that needed to be taken out. Mummy must have unplugged in because it didn’t make the funny noise it normally does and mummy didn’t go white this time. Instead she smiled and picked me up on her lap. I started banging on her keyboard and then mummy said, ” oh no B your just after pressing send” I was quite proud of this but again mummy obviously wasn’t because she called some one and explained how she was sorry, but her little girl was playing with her keyboard and pressed send so to please ignore the current e mail. Well if that’s what she thinks of my work I will just have to work harder to prove how productive I am.

So I managed to colour on the table, mash my dinner into the carpet along with emptying nearly all my bottle of milk on top of that, I toppled over the box of paper clips and took all the paper and letters off mummy’s desk. I opened the forbidden press and emptied it, took all the DVDs off the stand, tried to encourage the budgie to eat his food by eating his food like mummy does to get me to eat, I found my toothpaste and squeezed it all over the place and on my clothes and then crawled along the floor and made a beautiful pretty blue trail.

Mummy is running after me trying to make it look like I did nothing but I think I am nearly faster than her now so I am sure there will still be loads of my work left for when daddy gets back. I am sure he will be super proud of me. Unlike my mummy who’s favourite and only vocabulary at the moment is, “ah ah” ” No Béibhinn” “STOP” ” what are you doing B?” ” ah ah down from there” “oh no” or her favourite”Noooooooo, oh Béibhinn what have you done!” seriously how can she not see my wonderful work! Hope there’s nothing wrong with her eyesight guys.

So as you can see I am seriously busy. This may even be grounds for child exploitation! I really need to go now because I think mummy has just found the lovely surprise I just did for Daddy, oh man I am going to have nothing left at this stage. Have a great weekend your busy bee, little lady B x x

Happy Days

Well guys the last two weekends have been just super. I have been so busy socialising that blogging is getting harder and harder. Sorry folks but life is interesting and busy that it’s getting harder and harder to blog every week but I promise to update you as regularly as I can every few weeks from now on.

So last weekend was my most favourite cousin in the whole worlds Christening. My Baby Dolly Dollyingston AKA Brooke. Guys she was just beautiful in my dress. Apparently “The Dress” also was first worn by my mummy on her christening day and then by my auntie Laura on hers but I don’t believe them because to be honest guys neither of them would ever fit into that dress no matter how much weight they lost.

We had the best day ever guys. When it was all over we started to prepare for my big day.

Mummy and auntie Laura spent the days before my party baking cakes and cookies and getting the house looking lovely for my big day. We had a big fancy dress party and I dressed up as a Bee. My guy Daragh came as superman. He is soooo cool guys. I did my best to impress him. I even won a medal for being the best birthday girl so I hope he was impressed with that. He won a medal for being a cool strong super guy and i was super impressed with that. All my friends came and everyone looked so great in their customs. I enjoyed myself so much that I just couldn’t wait a year to have another party so mummy, daddy and I are going to organise a teddy bear picnic in currrabinny Woods near my house once the weather gets better. I will post all the details as soon as we organise everything. I am getting excited already.

So right now I am busy playing with all my presents. Thanks everyone for the cool gifts. I love them all even if mummy was cross that you got me things ’cause you have all been so good to me already.

So I am going to say good night now. I love you all lots, a big mwah from you little lady B x x

Crumlin Update

Thankfully all went well at Béibhinn’s Crumlin Check up today. Béibhinn is doing great at the moment and her happy self is shining through more and more with each passing day. Her new favourite thing is body slamming into her favourite doggy scruff, that uncle Pete got her for her birthday and climbing anything and everything in her way. We may need a crash helmet for her yet! If it wasn’t for her CHD a stunt woman would definitely be her chosen career.

Many of Béibhinn’s heart buddy’s are struggling with little and big problems at the moment. This means many of my wonderful rocks that I call my “heart mums” are also struggling and it breaks my heart. Today in Crumlin I witnessed what could have been when I saw a family carry there beautiful baby out the door and unfortunately not in a happy way. This little baby will never go home. It really hits home on these visits and makes you so thankful for your blessings. Tonight I am asking if you have time to say a little prayer for this family and for my many heart family’s that need prayers tonight.

As always thank you for your support, well wishes and prayers for our little miracle our Little Lady B x x

Some bonds cannot be understood…
Unless you have walked them before…
A path that I would not have chosen…
A future I just can’t ignore.
We’ve all watched our children intently…
Memorizing each line…
And let them leave our loving arms…
And prayed things would be fine.
We’ve paced the halls awaiting news…
And wondered just what lie in store…
We’ve felt our own heart’s racing as…
We walked through an ICU door…
We’ve seen the child we love so much…
Struggling to overcome…
The lines…the cords….the monitors…
No thoughts…no words…would come…
We’ve prayed for an improvement…
We’ve laid it in God’s hands..
We’ve cried…we’ve hoped…we’ve worried…
We’ve wondered of God’s plans.
We’ve learned just how a heart works…
Each valve and artery…
We’ve asked alot of questions…
We’ve faced each surgery.
And somewhere down this well worn path…
We’ve met more families…
Who know exactly what it means…
To live with this disease.
We’ve smiled at every triumph…
And shared in every sigh…
We’ve prayed for a child that struggles…
And each family that must say goodbye.
Some battles are fought with bullets…
And weapons made for war…
While these are fought in silence…
Behind a hospital door…
We’ve wondered what lies in our future…
We’ve been thankful for just one more day…
We’ve stopped and watched with tear-filled eyes…
Our children…as they play.
We’ve struggled with ounces and weight gain…
Why won’t my child just eat?
But heart mom’s …we’re a tough group…
We’ve learned how to face a defeat.
We’ve faced those moments…others do…
When life has got us stressed…
But it doesn’t take long to remember…
That we are richly blessed.
We’ve taken on a whole new role…
One we we wouldn’t exchange if we could…
We know that life is difficult…
We hold onto all that is good.
God chose each of us carefully…
I do believe he smiled…
Some bonds begin with strangers…
And just one special child.